Friday, June 27, 2025

future view

I cast my mind forward.Just a year or two, into my own future, 
what I see is an empty room.
 not very exciting.  rather gloomy and off putting,  in fact. 
no no wonder people invent an after- life. 




.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

Wednesday, June 25, 2025

brunch

We decide to go to Kings Park for brunch -- it's a beautiful day, too nice to stay at home :-)

Of course it's possible that my constant sleeping is the final, expected, stage of dropping dead... we put that thought aside and enjoy brunch. But I delay this post till I'm safely home :-)
Ha! it'll never happen :-)
till it does...




... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Tuesday, June 24, 2025

no comment !

I thought I was sleeping soundly at night
... but I've also been sleeping all day. feeling very tired. taken me all day to type just this short note. 

don't expect any exciting posts :-)



I walk okay, slow but steady.
tho last night I just looked at four steps and decided... no way.

s

.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

Saturday, June 21, 2025

silver chain

on Friday both sc nurse and doc call round.
they watch me walk unsteadily down the corridor. I fail to fall over so they are satisfied.

they both, and deb, want to send someone by to wash me. I absolutely refuse, so visitors be warned.

last night I sleep soundly but wake not very refreshed.
this morning I sit and snooze. listen to Deb and our grandson chatting and playing with lego. very pleasant background sound.

now they are off to parcour. I sit and watch th rain the garden. very pleasant... from inside...


.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

Friday, June 20, 2025

resting and restless

I've  had a week or more of restless nights.
the sort where a trip to the toilet involves an easy stroll
... with a lot of leaning on and bouncing off walls. :-)

and the days
... I'm mostly sleeping.
no damage, no new injuries. so... overall... I'm quite well:-)



.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

Wednesday, June 18, 2025

conversation

deb's sister visited. it's always a pleasure to see and chat with her. deb says that the conversation was clear and sensible.

as far as I could tell -- I was fast asleep for the entire visit. there's a skill worth having... talking clearly while asleep.

though it means that  I may limit my social interactions for a while :-)




.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

MRI march? 2025

this report on the latest MRI possibly means that the tumour has doubled in size as it grows back into its original area. and it' s still aggressive.
#==




stable haemosiderin staining of the resection cavity.  No evidence of  diffusion restriction.  No new enhancing parenchymal mass or leptomeningeal enhancement is  identified.  Stable shallow extra-axial collection over the right parietal convexity  measuring approximately 7 mm in depth.  There is stable diffuse neuro-parenchymal volume loss with dilatation of the  lateral and 3rd ventricles.     COMMENT:  There has been disease progression since the most recent previous MRI from  06/01/2025 with increase in the enhancing soft tissue mass within the  periphery of the right occipital lobe resection cavity.



   

not weak, but weary

yesterday, Deb's sister visited It's 
always a pleasure to see her and have a chat:-)

I hope that Deb and her sister had a good chat
... I'm sorry that I was sound asleep for the entire visit :-(

If it's any consolation, I then slept and snoozed for the rest of the day and evening.

Do drop by anytime :-)

... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Monday, June 16, 2025

dizzy is old hat

I was going to post about getting dizzy on a midnight walk

then in the morning
... getting out of bed
... I sit up, misplace my feet
... and roll onto the floor.

it takes three ambos an hour to get me up and stable again.

flat out on the floor is better than dizzy -- which is out of control.

so now I'm tested, fine, stable again... I hope. not dizzy, anyway.


.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

Saturday, June 14, 2025

more dizzy

I spend the morning leaning on walls, dizzy or sleeping

.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

quick dizzy note

I've been very tired for the last week or more
====

I wake up, usual reason :-)

walk with trolley to toilet
... feel distinctly dizzy. need to concentrate to get out of bed, then to walk in correct direction.

now peed. feeling a bit more steady., well, sitting down right now :-)

must admit -- dizziness does worry me.
cheerful but worried. feels like a priority to blog the situation ... dedicated :-)
Now back to be to keep warm with Deb :-)



... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Sunday, June 8, 2025

some brain news

I'm just waking up from an after-lunch nap. It's a tough life :-)

It was a (close-family) lunch. We have several birthdays birth within a couple of weeks, so we share one family meal out, this year at Koorak in Kings Park.
Plenty of room and good food for eight adults, with nearby playgrounds for the two grandchildren.
Must be good playgrounds, Deb supervised them and enjoyed it.

Brain:
My view is simplistic, my understanding is more cartoon than accurate. So most of what I write is wrong.

Cancer in my brain stem will *not* affect my lower limbs. So that's good... it's not driving me into a wheelchair.
Back to the expected, death by large growth through brain.
The MRI report that I posted in June explains, in tech-medi-speak, what brain matter is being affected, I posted it so I was never again tempted to try to understand it.

For the latest, in June, scan, some informal pre-release information:

The tumour has doubled in size since March. No great surprise, that's three months.
It's now as large as the original but too complex to be cut out.
In about the same space. So I was right to see it affecting vision and proprioception.

Nothing to be done... so we do nothing. Easy :-)

I did ask, if it's not via the brain stem, how does the brain control the upper body and lower limbs? which do the work of keeping me upright.
The answer was, 
A vague waving of hands over head, neck and shoulders and...it's very complicated.

so there. now we all know :-)



... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Friday, June 6, 2025

waist-level wobble


I need to look at the sequence of branches from the spinal cord.
getting out of bed this morning, my legs took a while to get under control. have I reached a new low in interference of cancer with brain stem control?
on the bright side... no trouble breathing. I'll be glad if I'm past that level.



.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772
   

Thursday, June 5, 2025

scan for interest

I've finished with cancer treatment
... but had a final scan on Monday.

The 3-monthly scans... for 7 years... checked for results of treatment and need for treatment.

athere's no more treatment: no available chemo, surgery too complex, radiation who knows.

Anyway... no more treatment -- but I'm interested to see what the tumour does with no treatment.

I do know that the tumour is still growing... I can see, feel, it's effect. A slight loss in peripheral vision and a definite loss in proprioception.

Pro-xx is the ability to put a hand out to grab something without needing to look to see it first.
In my mind pro-xx actually depends on continuous periperipheral glimpses of what's there.
I have lost that continuous view and knowledge of location so... loss of proprioception. It's noticeable... I have to be really careful reaching for things which are just on the edge of my vision.
===

So no question, in my mind, that the tumour is still growing... well nothing to stop it, eh?

But I'm interested to get a final scan:
how much has it grown?
There was one possible drug which offered a very low chance of... nothing much, I said no.


how large is it now? Has it moved? anything interesting at all?
Perhaps get an idea of future -- untreated -- rate of growth

nothing to be done anyway... just interested :-)
One final look
... then leave it alone to do its worst. ha!

 


... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

farewell to lungs

This would be more frightening if I had not had it before.

About 4am I wake up and can't breathe.
Actually I'm still breathing but not enough. I have the feeling that I am suffocating. It's horrible but, I've been here before. This time, understanding is quick and clear.

Everything below the skull is controlled by the brain, which in in the skull. Brain and body are connected by messages which travel down the brain stem. Roughly following the spine (going down the spine?)
all this is done automatically, subconsciously, by my brain.

Cancer is blocking the brain stem. Messages are not getting through.

There is a growing failure to communicate
... to the lungs (now
... to the heart (I think it happens
... top anything else (eventually).

I'm not sure how it will feel for the other organs but the lungs are first to go... and I feel suffocated.

Lungs may seem to be automatic but They are not.
They would sit there, doing nothing except that the brain sends a series of orders: breathe in, pause, breathe out, pause, in, pause, out, etc...
Many of those orders are now being lost in the cancerous stem. So my breathing is neither smooth nor regular. I'm not breathing properly. I'm suffocating.
===

What I do is make the messages to the lungs, a little more conscious.
I *consciously* take a deep breath. And another, etc.
The lungs are in working order. They need to be told to work.
I tell the lungs to breathe *deep*, in, out, etc.
I'm no longer suffocating
... automatic breathing kicks in
... long enough for me to relax. To sleep for another hour or more.

Suffocation will return, possibly not for hours. Meanwhile I'm a bit short of breath, otherwise fine.

Until
... I suspect that this loss of lung is what will kill me,
... But not right now :-)





... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Wednesday, June 4, 2025

no offense taken

I wake from a dream:

...watching a live   TV interview: 
adult whyt woman saying something
...sneering about ... blaks using wooden shields and tree-bark armour

... blak girl, sub-teen
says politely, 
...goodnight
interviewer asks, do you understand what whyt just said
Yes, says girl. She insulted my ancestors as being a primitive tribe
So...?
Girl replies,
So? She is correct. My ancestors were primitive ... back then. 
###


If I can dream such a civilised dream... perhaps there is hope that I too -- as much as the young blak girl -- can be counted as civilised.

... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Tuesday, June 3, 2025

good or bad?


I'm expecting a couple of days' warning as my body switches from living to dying. Yesterday I felt so rotten that I thought, this is it... a few more days and I'll be dead.
Today my body is fine, not rotten at all. Rather well, in fact, though weak and weary. Overall, I'm rather cheery. So I'm thinking, is this it? a last gasp of good cheer before I die?

Obviously no use getting a couple of day's warning
... I'll interpret it however I want :-)




... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Monday, June 2, 2025

sleeping

Grand kids were here for sunday dinner. they and their parents have been in Margs for the weekend. Just two nights, plus two days driving there and home again.
The kids are noticeably more tired -- and noisier --than the last few weeks.
Their father denies it, claims they slept in Margs and at least rested during the drives.
I claim that a long drive is exhausting for kids, sleeping or not.
... And it's easier for a non-parent to spot the tiredness. Easier and... it doesn't matter whether I'm right or not :-)

But by now, the kids will be home, in their own beds, sleeping very soundly.
... As will I, in just ten or so minutes :-)
yawnnnnn


... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

next morning

all that remains of last night's all-over-rotten is a headache. Perhaps a #3 out of 10 on a pain scale.

I'm having regular headaches, which is not good.
This is the worst but I don't like the regularity.
Not to worry, I feel hungry, which is a lot better that feeling rotten. Whatever that was, I hope it is passed gone.

Deb is up and awake -- so the day has begun :-)



... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

midnight mayhem

For some reason I often wake within a minute or two of midnight. Perhaps there is a clock which wakes up just enough to disturb but not enough for me to notice?
Last night I'm suddenly awake at 00:02
... this time it is not pleasant :-(
I'm feeling all-over rotten :-(

I go for a pee, feel no better.
Stagger -- and groan -- to the games room
... groaning loud enough to disturb Deb (that much is not entirely accidental.

As I try to describe it to Deb:
My stomach hurts, acid reflux (that one is clear. ... my Head aches. Muscles are tense and uncomfortable.
Nope, I don't know.... just physically awful.

Acid reflux stomach is easy, fresh water will fix it (wash the acid clear) Deb fetches a glass of water.

Stomach stops hurting, everything else gradually
 eases.
I feel a bit better.

What is now very clear: whatever it is... lying down will make it worse.

At last... the SC hospital bed comes into its own: I perch in it, semi-sitting but in a position that allows me to sleep.

I spend the night in the hospital bed. Whatever was rotten does not return. Phew !






... 
Dr Nick Lethbridge... Churchlands
  Agamedes Consulting ... dexitroboper(*):
(*) you provide facts and data
I return solutions and possibilities and ADVICE



================
6 Thornbill Way  /  0419197772


http://notdotdeaddotyet.blogspot.com
dying for you to read it :-)

and ranting: My Three Rs

Sunday, June 1, 2025

status at sun 1st June 2025

weak and weary!

last evening I'm so weak that I can barely walk
in fact I can barely lean on the trolley
and shuffle along behind it.
a good night's sleep and
I can walk a bit better. slowly, wearily  but not so weakly.
walking to coffee and cake, which keeps me going :-)

I snooze for a lot of the day. still tired, still weak but feeling much better.

oh... and I remember : I'm supposed to be close to dying.
yes, I can believe that but
... not immediately dying, so that's all right.



.. Dr Nick Lethbridge ... dexitroboper
Agamedes Consulting... Churchlands WA


... you provide data and facts ... I return solutions, and possibilities and ADVICE


6 Thornbill Way / 0419197772