Saturday, July 21, 2018

future planning

It's not often that I enjoy going to the dentist... This week, (a) there are no fillings and (b) it's good to find that I still need my teeth :-) Though it does seem a bit late in the day to have apparently mastered avoiding the constant need for fillings & repairs.

Deb & I were there together. As we left Deb made an appointment for her next check-up in six months' time. I said, I'll leave my next check-up for twelve months. Mostly because I don't really enjoy visits to the dentist. And it's nice to make a plan for so far in the future :-)
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​

Bill Watterson - "There is not enough time to do all the nothing we want to do."


So we're planning a walking holiday, along the Cape to Cape track. A few months away yet, timed for Spring. Also timed for school holidays -- despite expected crowds of kids -- to suit Deb's sister's schedule.

The three of us plan to do the walk, Deb, her sister, me. "We" walked the C2C years ago. That is, Deb & her sister walked, I dropped and picked up for each day's walk. This year I'm expected to walk rather than drive. Ah well. As Jack Benny almost said:

"Give me [hiking shoes], fresh air and a beautiful partner, and you can keep the [shoes] and the fresh air."
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Last week I thought that I was feeling fine. This week, the improvement from Tuesday to Wednesday is so noticeable... I guess I was still affected by the tail end of having a cold. For the last few days... nights... even the nights seem to be warmer ! The new electric blanket helps. But some nights I even turn that off.

I was accepting being cold at night as "normal". The new normal is feeling not quite as cold at night. And speaking of normal...

Last time the dentist saw me I was saying, I have brain cancer. This week, this lead to some conversation before my teeth were examined.

What brain cancer symptoms were there? he asked. None before the day of my collapse, I replied. Except for the large & hard testicle... I had been planning to ask the GP about that. Oops! a second (testicular) cancer...

I had known that the testicle was large and hard. But... after a while... it seemed almost normal. Normal enough to not panic.

Then it was removed. I looked at the remaining testicle and thought, Wow, that other one really was extra large... My view of "normal" had grown with the cancerous testicle.
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And back to that holiday plan:

We will walk in Spring. Which just happens to be, a week or two after my next brain scan. Ooo-kay. I'll schedule the scan and move the oncologist appointment a bit earlier than planned, so I will know the results before we start walking.

If a tumour is back... things could be interesting. Walking with a fresh surgery scar ? Perhaps I can cut a hole in my hat for self-radiation treatment ? No worries !

We plan to enjoy ourselves. All sorts of things could interfere with that plan. My illness is nothing, compared to Deb's sister's potential problems !

Enjoy life :-) While we can. And then, enjoy life just a bit more.





Dr Nick Lethbridge / Consulting Dexitroboper
...        Agamedes Consulting / Problems ? Solved
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"I've found that there's a reason for everything… I constantly make the wrong decisions." … Pardon my Planet

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Dying for you to read my blog, at https://notdotdeaddotyet.blogspot.com.au/ :-)



Monday, July 16, 2018

sick... or old... or just nervous

I am very well, thank you :-) Oh, apart from the terminal cancer, that is... Which really -- right now -- does not seem to affect me. No drugs, no side-effects. No effects of the cancer, either... as far as I know !

Today my brother was ready to suggest that I should be aware of the symptoms which preceded my collapse, so that I can ... well ... do something about them before I collapse again. Unfortunately, I replied, there were no early warning symptoms. None at all.

Except for the on-the-day blank spots. By which time I was collapsing. Though I now stay aware of the possibility of more blank spots. And hope that, if I do notice them, that I have enough self-awareness to get help... Though by that stage I will be already due for more surgery, etc.

But were there really no earlier warnings of a growing tumour ?

"There are no facts, only interpretations." -- Friedrich Nietzsche


As far as I know, there were no early warnings. I was as fit as a fiddle -- till my brain exploded. Is this "fact"... or is it just my own "interpretation" ?!

Yesterday, I could have been heading for all sorts of physical and mental breakdowns. Feeling nervous, trouble sleeping. Worried about my impending doom ? Unsettled digestion. After-effects of chemo ? Fear of what tomorrow would bring. Stress & depression ? Worried that I would fall over. A bit wobbly as I stood up. Brain going soft ? Minor headache. Brain going hard ?

Those are facts and possible interpretations. As an alternative interpretation: I was suffering from the standard pre-fun-run nerves !

Today the alarm is set for 5am. I am awake at 4am, to go to the toilet. Can't get back to sleep (very unusual). Suddenly wonder, What time does the run start ? Go downstairs, check the web. Upstairs again and I set the alarm for a half hour later. Still can't sleep.

I apply a solution to a problem that I have mentioned in earlier posts: I get cold at night. We bought an electric blanket. Bliss ! I turn the blanket to roast & bake and am asleep as soon as the heat seeps through.

Aside: My first ever experience with an electric blanket was interesting. I woke up in the middle of the night, feeling very cold. (Thirty or forty years ago. I have always had trouble keeping warm at night.) Anyway, not to worry, I switch our new electric blanket to heat... Within minutes I am warm as toast and fall fast asleep.

It's only the next morning that I find that the blanket had not yet been plugged in.

Back to the present and we have an electric blanket. Aaaahhhh :-)  Though I still need to turn up the heat in the wee small hours of the morning. So I do. And I sleep soundly.

Till 5:30. Up, breakfast, dress, drive... and run.

It's a trail run. Almost 13km over a very steep hill. I've been looking forward to getting back to trail runs, it's fantastic fun to run (jog, walk) through the bush. With just Deb, or with a crowd of friendly trail runners.

This -- in the alternative interpretation -- explains most of those nervous facts. I am always nervous on the day before a fun run or trail run. Sleep and digestion are the main sufferers. Everything settles down once the run has begun.

This run in particular has potential to test my nerves. I have run a recent 12km fun run -- on level roads. This run will be on rough tracks, up and down steep hills. Today's trail run is nearly 13km. My recent training runs have been up to 6km. And I will be running on bush tracks -- well away from ambulances.

Should I warn the organisers that I am prone to falling over and frothing at the mouth ? Nooo... but I do mention that it's good to be back but I am even slower than before.

Pre-run nerves: a valid interpretation for most of my symptoms.

And yet... there is a third possible interpretation of some of those nervous facts: I am getting older. Wobbly as I stand up: older and with lifelong low blood pressure. Made worse by sitting still at a computer (or book) for hours on end. And age, which often seems to take away the ability to balance.

And then the headache leads to a fourth possible interpretation: imbalance of salt. On the way to the run I drink lots of water and I eat salty corn chips. I eat and drink as my body seems to indicate the need. My headache disappears.

"There are no facts, only interpretations." -- Friedrich Nietzsche


The facts are, that I could claim all sorts of minor problems and irritations. My interpretation is, that there are all sorts of causes, none being cancer. I am, right now, quite well :-)
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Oh, and I finished the trail run. Very tired but still moving. Slowly. Managed to beat perhaps two people !

Feeling very satisfied with my performance.

So glad to be able to run another trail run :-)










Dr Nick Lethbridge / Consulting Dexitroboper
...        Agamedes Consulting / Problems ? Solved
===

"I've found that there's a reason for everything… I constantly make the wrong decisions." … Pardon my Planet

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Dying for you to read my blog, at https://notdotdeaddotyet.blogspot.com.au/ :-)



Thursday, July 12, 2018

snatches of dreams

The world is about to be destroyed, possibly by a giant meteor. Everyone is given a choice: stay on Earth until it is destroyed, or fly up to meet the meteor. I choose to fly up... Close up, the meteor looks like a rusty red rough spaceship... We are about to crash. I say to the person next to me, Duck down and shelter behind me. Dream ends.

Is this my dream interpretation of death by cancer ? After surgery, radiation and chemo I am given a choice: More chemo (with no expectation that it would do any good), or stop chemo. I choose to stop. Who was I sheltering? Perhaps it is Deb; I do want to protect her from after-effects of my death. As in the dream, a somewhat pointless effort ! Then, like all my dreams -- it ends before impact. Blatant optimism: in my dreams, I never crash :-)
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I have just left hospital after having a cut hand sealed up. Then I go back to the hospital because an even larger cut, on my other hand, needs to be fixed.

This is easy to interpret: I scratch both hands at orienteering, pushing through bush. The first is a simple scratch, it oozes blood rather than really bleeding. A bit later I think, That's funny, my other hand is sticky. I look at the hand... Lots of blood, seeping down from near my wrist ! Turns out that both "wounds" are minor scratches. The second is on a spot which bleeds more than the size of the scratch would suggest. Neither cut hurts but they are impressive enough to cause me to dream about them.
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I'm with a group of people who are being forced to have minor accidents. We fall over, or are pushed, nothing really serious. The people doing the pushing are gaining some benefit... even in the dream I don't know what it is. I escape -- to a place where the furniture is designed to fall apart when used. The idea is that whoever touches the furniture will fall over with the collapsing furniture. I, of course, collapse the furniture but don't fall over :-)

No idea of any meaning to the first part of this dream ! Unless I'm blaming all my problems on other people ? Ditto with the second part. With the extra bonus that, no matter what collapses -- I won't fall with it. More blind optimism :-)
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I do occasionally have flashes of fear of dying. Fear and disbelief. More often, I worry about the effect on Deb. Which does seem to indicate that I have enough disbelief to cover the actual fear :-)

Right now I *expect* that my next scans will be clear :-) On the other hand, I am also doing my best to organise tax, super & other finances so that they will be easy for Deb to manage.
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Most of my current problems and concerns are mental rather than physical. This is because I am physically quite well, which leaves more time for mental self-analysis.

Deb & I were on a rogaine at the end of last month. We walked 28km over the two days. We have been orienteering, where I travel further and sometimes faster than Deb, though Deb does better than me by finding all of her control points.

And we are back on a run training plan.

We have spent months "keeping fit" with regular runs. It is just not the same as having a *plan*. Also, getting a formal plan is (I think) a way for Deb to accept that life goes on, that what was good "bC" (before Cancer :-) is still, good. So we go back to Pat Carroll...

Pat Carroll definitely deserves a plug ! He provides a training plan to suit Deb's requirements, plus feedback. Plus a positive and supportive attitude, all the way. He also deserves an apology: Deb gets tailored training plans and I also use them, just with some adaptation to suit my own targets. I... used to... run further and faster on each training day. For me there is a major advantage: when Deb goes running, I go running; otherwise I am too lazy to train at all. So thank you Pat, from both of us !

Deb feels that she is ready for the regular training of a plan. With the extra "challenge" of a goal: the City to Surf. Following a plan builds our fitness... It also gives us confidence in our ability to complete the run. As soon as we receive the new training plan -- I feel a sudden increase in enthusiasm :-) Not just for the plan -- but for the decision to commit to a couple of months of regular training.

Interestingly enough: this City to Surf will be 12 months since I crashed out of last year's C2S. For some reason, Deb is a bit worried... As I tell her, it's not the running which will kill me. And it's nice to know that the ambulance support has been tested and found effective :-)
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And now for some
​shallow ​
philosophy:
​ 
​​
"Life is too important to be taken seriously." -- Oscar Wilde


Absolutely true !
​ If I spent all my life being serious, I would not enjoy it nearly as much. Though it's possible that some bosses would have enjoyed their lives a lot more :-)

Sometimes I do have to remind myself to lighten up. When I'm gloomy, Deb often bears the brunt of it. Sorry :-(​

​When I poke fun at the world -- and at myself -- it's because that's the best way to deal with life. Life is important. It deserves to be treated with good will, good humour -- and jokes. Good or bad :-)​


​​
"I bought some batteries, but they weren't included." -- Steven Wright
​ ... I have no idea what that means. But I think it's funny :-) ​









Dr Nick Lethbridge / Consulting Dexitroboper
...        Agamedes Consulting / Problems ? Solved
===

"I've found that there's a reason for everything… I constantly make the wrong decisions." … Pardon my Planet

===


Dying for you to read my blog, at https://notdotdeaddotyet.blogspot.com.au/ :-)



Saturday, July 7, 2018

happy in a holding pattern

I now have three accepted but contradictory ETDs.

First, the medical statistical view: I have a 50% chance of living past September this year. Having spent six months complaining & being treated & suffering treatment side-effects, that leaves a 50% chance of six more months to live. Six months ? Not enough time to plan or act on any good plans, so useless for all practical purposes.

So I set my planning horizon far enough ahead to allow for more interesting activities. I plan for a further three years, one calendar month and an indeterminate number of days. Since this is always based on "today", I can plan holidays and such anytime up to (as of today) August 2021. Plenty of time to enter the trail run across Cradle Mountain though perhaps not enough time to get fit enough for the run :-)

Then a friend told me that he had met a woman whose brother had brain cancer and survived for six years. So I accepted my friend's recommendation that I should plan to live for another six years. At least.

Now I have three, different, planning horizons. No worries ! With skillful use of double-think -- I accept them all :-) And hope that I will be equally accepting of whichever one proves to be closest to correct.
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On Friday, Deb & I take a drive in the country. Enjoying being out in the country and finding a few geocaches on the way. We stop for lunch in the small town of York.

Small town ? Small world ! Out of all the places we could have stopped for lunch -- in York we see, call out to, chat with a friend who is also just passing through York.

We met Sarah on a 28 day cruise to Antarctica. Speaking of which: that cruise was the most expensive holiday that we, Deb & I, have ever taken. Was it worth it ? Yes ! The cruise -- and the Antarctic experience -- were well worth the expense. (This blog was originally created for holidays; Antarctica is way down the page at January 2017.) Worth the expense ? Yes, but...

I worried about the cost of the trip. Then I collapsed and was diagnosed with cancer. For a few months the money spent on Antarctica had been, That's a fair chunk of our savings, I think our next holidays will be on the cheap. Now I see it as, Well worth the cost, no way we could go there now. One less thing to worry about :-)

Deb, Sarah & I chat, exchange news, part. Deb says to me, I wonder if Sarah noticed that you (ie me) are wearing the same shirt that you (yes, me) wore nearly every day on the Antarctic expedition...
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But I have now bought two new shirts ! Specially embroidered:


​
That's my plan. To enjoy life -- with a brain scan every three months followed by another three months -- hopefully -- clear. I think it's sort of funny. I also, occasionally, need to remind myself to, enjoy.

Deb says, What if the scans become every *six* months ? Okay, I reply, I'll get new shirts... and next time, I'll remember to include the web address for this blog !
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Meanwhile... other friends and relations are falling ill. Strokes, heart problems, various cancers, you name it. A problem, I guess, with knowing so many people of about my own age :-) Still, it's difficult. As far as I can tell, I may be the healthiest person I know. Sure, mine is terminal -- eventually -- other than that I'm relatively fit and well.

I've said it before: I'm glad it's me with cancer, not Deb nor the kids. With all this blatant one-up-manship of diseases and treatments -- I'm even more pleased with my choice of diseases. So far... :-)
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"Things do not happen. Things are made to happen." -- John F. Kennedy

Have you noticed that my posts end with a quote ? I collect quotes that I like then occasionally change my email signature. There's usually no relevance to the specific email, it's just a quote I like. Or a quote which I feel is relevant to my life...

Kennedy, above, is half right. Things are made to happen ? Not -- as far as we currently know -- with my form of cancer. On the other hand, how I deal with it is very much something that I have "made to happen".

I could -- as some people do -- dedicate the rest of my life to discovering a cure for cancer. I'd rather donate to the Salvos :-) What I can do -- what I choose to do -- is to enjoy life. Neither more nor less than "pre-cancer". Perhaps, though, more consistently.

As far as anyone can tell, cancer did, just happen. How I deal with it is up to me. So I do my best :-)
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Currently I am in a holding pattern. As far as cancer is concerned that is. So, I decide, I will fill a few blog posts with deep and meaningful philosophy. (That's the section above, in case you didn't realise.) Then I start typing this post and -- surprise, surprise ! -- there are far more words that I expected. Nothing to report ? Doesn't stop my flow of words :-)

I may pad future posts with "philosophy" based loosely on quotes. I enjoy it :-) And this blog is still, essentially, for me.






Dr Nick Lethbridge / Consulting Dexitroboper
...        Agamedes Consulting / Problems ? Solved
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"What a trial it is to submit to the whim of fools." … Captain Trumane, The Waking Fire

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Tuesday, June 26, 2018

white hair envy

I've started looking at white-haired couples with a twinge of envy. For years I've had this image of growing old with Deb, of supporting each other as we gradually -- like old lecturers -- lose our faculties. Now it seems as though Deb will grow old & grey without me. Sigh. I hope that Deb will be okay.

Mind you, we both already have the grey hair, at least. I may have given it to Deb. But I was expecting quite a few more years together, as we fade from grey to white.
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At the same time, the expectation that I will die "soon" seems unrealistic. Rather, I am still in double-think: at one and the same time I think, Okay, I'm dying... and, No, I can't believe that I'm dying.

Whatever the truth (and yes, I do know the truth) I'm enjoying life. Except for the background of worry about Deb.
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Except for the weeks of both of us having a cold :-( "A" cold ?! It could be a couple of colds, one after the other. Deb battles on. I suffer and get as much sympathy as possible...

On the bad days -- as the cold waxes and wanes -- I suffer from the cold. Cold temperature, that is. Every winter I suffer from the cold -- but having a cold makes me notice it more. Several nights, I end up sleeping in three or four thermal tops, thermal long-johns and a wool beanie. Plus pyjamas, of course. With Deb warm & cosy and generating heat next to me. But I'm still cold.

On a particularly cold night I have an interesting visual problem...

I wake up, middle of the night. Glance at the bedside clock to see the time... and can barely see the clock! The glow-in-the-dark figures are a pale, barely visible grey! I sit up... rub my eyes... push the wool beanie off my face... and can see clearly again. Phew :-)
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All else is fine :-) Fine enough that I really notice how unfit I am. That, however, is something that I can do something about... If only I can be bothered.






Dr Nick Lethbridge / Consulting Dexitroboper
...        Agamedes Consulting / Problems ? Solved
===

"What a trial it is to submit to the whim of fools." … Captain Trumane, The Waking Fire

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Sunday, June 17, 2018

some days are diamond...

First: No recent posts because nothing much has happened! Nothing relevant, anyway. Feeling fine (recovering from a cold). Except...

As John Denver sang, "Some days are diamond, some days are stone."

I start the week feeling just a bit miserable. Just the same things that have always made me miserable: things I would like to do but know I won't. With slight overtones of, I may die within three months! Which may sound bad -- but it does give me a solid excuse for not trying harder :-)

Much of what I have not done -- but thought that I should or could have done -- is because I lack the driving urge to *succeed*. If I had that drive I would not be "me".  Nor would I be as happy as I generally am. Moderation and satisfaction with the results of moderation... But:

Monday morning I am miserable.

Shortened life expectancy is only a minor part of my Monday misery. More a result than a cause. My standard response to misery is to do something -- something else -- that is enjoyable and do-able. So...

Monday afternoon I update my list of *fun* things to do... my list of *do-able* fun things to do. This moves me from miserable to okay.

Monday evening -- with Deb's approval -- I register us for fun runs. I enter us both in a run which begins and ends in the new stadium. I enter us both in the City to Surf. I enter just me in a trail run... I really miss those trail runs!

These future fun runs give me a strong incentive to train, to regularly run.

In the last ten days I have ... walked ... 2.5km. Slowly. That's my current training regime. Oh dear. I finally up the ante. Run 6km on Wednesday. 8km today. Still slowly... but better than nothing :-) And with hills... After all, running across Cradle Mountain is still on my to-do list.
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Tuesday, I book some accommodation... There is a rogaine at the end of the month, a 24 hour rogaine. We should be walking, sleeping in a tent, walking again the next day. Instead of "sleeping in a tent" -- Deb & I will sneak away from the event and spend the night in a comfortable cottage.

Lots to look forward to! All misery has passed :-)

Well, okay, I still get the occasional flash of, I should do "that" :-( Or, even less often, a flash of, I'm gonna die! I'll be scanned every three months, any one of those scans could lead to more treatment. Any scan could be the signal that, The End is Nigh. So what ?! Still plenty of life to enjoy :-)

Though I notice that I have started grinding my teeth at night. An old habit which I thought I had shaken. I think it's minor but I'll ask the dentist if I'm grinding enough to damage the teeth. Bad news: the dentist would regularly comment on the damage I was doing to my teeth by grinding. Good news: I'm still alive to need another 12-month dental checkup.

My current motto is, "Enjoying Life. Three months at a time :-)" T-shirts will be printed...
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Also to be printed: I have finally wrapped up the "blog book one", to be printed for Deb. I also plan to print a whole lot of photos of our grandson, from day 1 to very recent. Again for Deb but for completely different reasons :-)

Did I mention that I was preparing the same "blog book one" as an ebook?  It's now available on Smashwords. Not that I expect (or want) to sell it, I just want to maximise the results of putting it all together :-) Just search for "Nick Lethbridge". Not Dead Yet is just above "Nick & Knobby Go Hollywood". Hmmm... no, that one is not mine. Knobby barely goes anywhere, these days.
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I'm sure there was a joke I wanted to post... now forgotten. Ah well. That's the penalty I pay for not blogging when the thoughts are fresh; now I'll worry, What was that joke?!

And so -- with a sad lack of punchline -- that's all for tonight.






Dr Nick Lethbridge / Consulting Dexitroboper
...        Agamedes Consulting / Problems ? Solved
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"That which does not kill us does not kill us." … attributed to Conan the Barbarian

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Tuesday, June 5, 2018

feeling good ... with reservations

We go orienteering on the weekend, over two days. I fail to finish my two courses. A standard problem: I get tired and lose my ability to navigate. This weekend I tire more quickly than in the past, a sign of loss of fitness. I'm recovering my ability to jog but still have trouble climbing a hill. I really need to improve my strength on the uphills, so I can enter trail runs again.

btw: Deb does very well, on each day and in the overall results :-)

I've just updated my diary, to remove "take Temo" for this week. What a relief: no chemo, no side-effects! Of course this means that all known anti-cancer treatments have reached their effective limits. So it's good news and ... not so good :-)

The latest MRI shows that I am currently clear of visible cancer. I thought that I was handling the pre-scan result waiting quite well -- till I feel the relief with the "clear" result. Pre result I was coping, with a "clear for now" result I am... vastly relieved.

Though I do notice -- even now, post-scan result -- that I have a tendency to grind my teeth. I've done that in the past, under stress. I eventually learnt how to not actually grind -- but the current tendency to grind shows that I am not entirely relaxed. Oh well, insert "only a short-term problem" here :-)








Dr Nick Lethbridge / Consulting Dexitroboper
...        Agamedes Consulting / Problems ? Solved
===

"That which does not kill us does not kill us." … attributed to Conan the Barbarian

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